Mesothelioma patients, as well as their caregivers, are under a huge amount of anxiety and stress, and many report that they receive little support to help them deal with the psychological impact of living with the disease, according to a review of studies published in the European Journal of Cancer Care.
Even with the most sophisticated treatments available, mesothelioma survival rates have improved little over the years. Patients often face a poor prognosis; many live for little more than a year after being diagnosed. Patients are left to grapple with the emotional impact of their prognosis, as well as with symptoms that can be severe enough to interfere with every aspect of their lives. Because this cancer is so rare, the psychological toll of mesothelioma on both patients and caregivers hasn’t been well studied, and doctors often don’t know how to address their patients’ emotional needs.
“It is important for clinicians to understand the social, emotional, and physical impact of the disease if they are to fully meet patient and family member needs,” explains Sally Moore, Nursing Research Fellow with Royal Marsden Hospital in Sutton, England. “Most clinicians see very few patients with mesothelioma and teams have tended to ‘lump’ or group patients with mesothelioma in with their population of patients with lung cancer.”
Doctors may assume the experience is the same for both diseases. In reality, mesothelioma patients may need very different care than lung cancer patients, in part because mesothelioma is more difficult to diagnose than lung cancer, and there is far greater uncertainty surrounding its prognosis and treatment, Moore says.
To find out what is already known about the experience of living with mesothelioma, and to identify what still needs to be learned, Moore and her colleagues did a search of the currently available research. They found just 13 relevant studies that discussed patient quality of life and symptoms.
Even though few of these studies were focused specifically on the experience of living with mesothelioma, they did highlight the impact mesothelioma can have on patients, both physically and emotionally. Most patients reported experiencing significant symptoms, particularly pain, breathlessness, cough, appetite loss, fatigue, and difficulty sleeping. These symptoms often were not being treated effectively, and were having a significant affect on patients’ social interactions and ability to function on a day-to-day basis.
As significant as these physical symptoms were, the emotional effects of mesothelioma were even more profound. Patients reported feeling anxious, depressed, afraid, and isolated. Their caregivers faced an even higher emotional toll from the disease. Many caregivers indicated that they were not receiving the support they needed from health care professionals.
This study highlights the necessity for more research on the physical and emotional needs of mesothelioma patients, so that health care providers can develop new strategies to meet those needs, Moore says. It’s also important for health care providers to recognize the emotional and physical toll of caring for a patient with mesothelioma, she says. “We need better assessment of caregivers’ needs and strategies to ensure better preparation, education, and support of caregivers in their care-giving role.”
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Saturday, November 28, 2009
Sunday, November 15, 2009
Mesothelioma Resource Site Provides Help and Information for Asbestos Cancer Patients
November 05, 2009 ) New York, NY - IQ Mesothelioma is pleased to provide a comprehensive Mesothelioma Help Center for mesothelioma cancer patients and their loved ones. In the aftermath of a mesothelioma diagnosis, you likely have many questions and concerns. To help you through this difficult time, IQ Mesothelioma has gathered free resources and information on several topics that are often on the minds of those who have developed mesothelioma after asbestos exposure.
One of many important decisions you must make after a mesothelioma diagnosis is where you will be treated and which doctor you will trust your care to. Articles covering “Choosing a Mesothelioma Doctor” and “Choosing a Cancer Treatment Facility” offer general guidelines and practical advice to help you with these decisions. You might also consider joining a mesothelioma cancer support group. These groups can vary in their structure and focus, so it is important to find a group that suits your needs and personality. An article entitled “Support for Mesothelioma Patients and Families” outlines sources of support for mesothelioma patients, as well as how to find the right support group. A list of Mesothelioma Cancer Support Groups is also available on the site to help you get started in your search.
If you are the friend or family member of a mesothelioma patient, you may be wondering what you can do to help. In addition to offering your support and assistance, you might consider making a donation to a cancer foundation or volunteering your time to a charitable cancer organization. This is a great way to make a difference in the lives of cancer patients and support the search for a cure. Take the first step toward getting involved by visiting IQ Mesothelioma’s Cancer Charity & Foundation Directory. A list of cancer organizations in each state, as well as a link to the organization’s website and a contact phone number, is available to help you find a charity near you.
If you are interested in reviewing the articles and information in the Mesothelioma Help Center, visit http://www.iqmesothelioma.com/ today. Additional resources on the site include a national database of mesothelioma doctors and cancer treatment centers, articles about the types of mesothelioma treatment, and information about mesothelioma clinical trials.
No one should have to face mesothelioma alone. At IQ Mesothelioma, our goal is to help you find the doctor, treatment center, and support group that’s right for you, so that you have a strong team on your side as you fight this disease.
One of many important decisions you must make after a mesothelioma diagnosis is where you will be treated and which doctor you will trust your care to. Articles covering “Choosing a Mesothelioma Doctor” and “Choosing a Cancer Treatment Facility” offer general guidelines and practical advice to help you with these decisions. You might also consider joining a mesothelioma cancer support group. These groups can vary in their structure and focus, so it is important to find a group that suits your needs and personality. An article entitled “Support for Mesothelioma Patients and Families” outlines sources of support for mesothelioma patients, as well as how to find the right support group. A list of Mesothelioma Cancer Support Groups is also available on the site to help you get started in your search.
If you are the friend or family member of a mesothelioma patient, you may be wondering what you can do to help. In addition to offering your support and assistance, you might consider making a donation to a cancer foundation or volunteering your time to a charitable cancer organization. This is a great way to make a difference in the lives of cancer patients and support the search for a cure. Take the first step toward getting involved by visiting IQ Mesothelioma’s Cancer Charity & Foundation Directory. A list of cancer organizations in each state, as well as a link to the organization’s website and a contact phone number, is available to help you find a charity near you.
If you are interested in reviewing the articles and information in the Mesothelioma Help Center, visit http://www.iqmesothelioma.com/ today. Additional resources on the site include a national database of mesothelioma doctors and cancer treatment centers, articles about the types of mesothelioma treatment, and information about mesothelioma clinical trials.
No one should have to face mesothelioma alone. At IQ Mesothelioma, our goal is to help you find the doctor, treatment center, and support group that’s right for you, so that you have a strong team on your side as you fight this disease.
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